We visited a highly regarded pediatric cardiologist this week at Columbia Presbyterian Hospital in New York. It was a short drive from home, and I think future visits will be well worth the hour in the car.
We got a confirmation on the diagnosis: Persistent Right Umbilical Vein with missing Ductus (I'm missing a word in there somewhere, but it was an emotional day to say the least. I didn't catch everything). It's a prenatal issue primarily, that will effect the development of the heart. What's happening now is that our sweet girl is getting extra blood draining into her heart from this Right Umbilical vein. This can cause an overload, and may lead to heart failure before we can meet her.
Our mission now - get through the next 10 weeks or so with a strong heart.
Once we can deliver, we're into more comfortable territory. Not that we're guaranteed smooth sailing, but at least we (and by "we" I mean "our doctors") can better control what happens once she's out in the world.
So now we try to stay positive, and hope this little lady has the stubborn, driven spirit of her mom and dad in there.
No comments:
Post a Comment